ABOUT US

Who We Are

We are dedicated to improving the lives of people living with epilepsy through awareness, education, advocacy, and support. We work to reduce stigma, promote understanding, and ensure that individuals with epilepsy have access to the right medical care, social inclusion, and opportunities to live fulfilling lives.

cr
  • Education and awareness campaigns
  • Support services
  • Training and preparedness

We partner with healthcare providers, schools, communities, and policymakers to raise awareness about epilepsy, train caregivers and professionals, and advocate for better healthcare systems and policies. Through outreach, counseling, and awareness campaigns, we strive to create a society where epilepsy is better understood, and those affected are empowered, accepted, and supported.

hand
The Existing Gap
Globally, over 50 million people worldwide live with epilepsy (WHO, 2023). About 80% of people with epilepsy live in low- and middle-income countries. Around 70% of people with epilepsy could live seizure-free if properly diagnosed and treated. Mortality: People with epilepsy have up to 3 times higher risk of premature death, often from injuries or SUDEP (Sudden Unexpected Death in Epilepsy). Treatment gap: In low-resource settings, up to 75% of people with epilepsy do not receive needed treatment.
hand
Currently, in Kenya, it is estimated that 1 in every 100 Kenyans has epilepsy (approx. 1 million people). Prevalence is higher in rural areas due to limited healthcare access, infections (like meningitis, malaria, neurocysticercosis), and poor maternal care. Studies show misdiagnosis is common: many are mistaken for mental illness or spiritual conditions. Stigma is a significant challenge, leading to school dropouts, job discrimination, and social isolation. Treatment availability: Anti-seizure medicines are available in Kenya, but cost, stock-outs, and lack of awareness create a treatment gap of nearly 50–60%.

Vision

Mission