OUR VISION

A world where individuals living with epilepsy are fully understood, supported, empowered and given an opportunity to live healthy, normal, dignified, stigma-free lives.

OUR MISSION

To ensure the quality of lives of individuals living with epilepsy is improved. Through awareness, education, advocacy, access to care and building partnerships with relevant organisations/parties.

About The Founder

Portrait of Millicent Misango for Epilepsy Foundation of America article jpg
Globally certified by multiple international institutions as an epilepsy healthcare professional

My journey with seizures began after a motorbike accident. I was treated successfully for a leg injury and thought that would be the end of it. However, while working for a corporate company, I experienced my first seizure. The diagnosis didn’t come easily—it was a long and confusing process. My colleagues, family, and I were all frightened and overwhelmed, as this was something none of us had ever encountered before. I had never even fainted before, so the recurring seizures, day after day at work, left me feeling helpless and uncertain. I assumed that once I healed from the accident, my body would return to normal. That wasn’t the case. Months later, I learned that a blood clot in my brain was causing the seizures.

Things became even more complicated and frustrating as finding the right balance of anti-seizure medication took years. I had to leave my job and step away from everything to focus on treatment and recovery. It was a difficult time, and I struggled mentally, emotionally, and spiritually, feeling like I had lost everything. Rejection and uncertainty clouded my path, and I had no clear direction despite regular doctor visits. During this period, I realized how limited the available information and support were for people like me. This lack of awareness sparked a desire in me to learn more and advocate for better understanding, treatments, and support systems for those living with epilepsy.

Through my personal experiences and research, I have developed a strong commitment to raising awareness, advancing knowledge, and improving the quality of life for those affected by epilepsy. My experiences living with epilepsy, combined with my passion for creating awareness, have inspired me to continue advocating for a brighter future for those affected by this condition.

Core Objectives

Our Goals

Education & Awareness
Develop initiatives that inform communities, schools, and workplaces about epilepsy to reduce stigma
Support Services
Create support networks for individuals with epilepsy and caregivers through online fora, in-person meetings or events
Training & Preparedness
Provide first-aid training (e.g seizure response protocols) for teachers, community members, and emergency responders